Christine Boden

My career began with biochemical research, then scientific publishing, communication and policy. I became First Assistant Secretary in the Department of Prime Minister and Cabinet, advising government on science and technology, and managing $130 million funding for research. As a 46-year-old single mother of three daughters, aged 19, 14 and 9, my life was frenetic, yet I met work deadlines successfully, managed staff and money, and kept my household going!

I was amazed when I was diagnosed as having Alzheimer's disease. Overnight I became a label - I was traumatised, yet found there was no support for people with dementia.

My faith was my mainstay, as I became more unwell. Hallucinations (part of the disease) finally drove me to seek prayer for healing. Not only did they stop, but gradually over the next month or so, I became much better.

I had been writing a book about my experiences, and was able to describe this recovery. The book, Who will I be when I die? was published by HarperCollinsReligious.

I started university study in 1998, for a graduate diploma in counselling so I can help people with dementia. I am involved in support networks, which are starting up through the State Alzheimer's Associations.

In the same year, I was rediagnosed with frontotemporal dementia, and may live longer. Then I met a wonderful man, who I’ll marry in 1999! All this is quite astounding for someone who was given the death sentence of Alzheimer's in 1995.

I still face the deterioration of dementia, possibly death, and write and speak about what it is like to experience the various diseases which lead to the symptoms of dementia, and how sufferers need support.

I will keep writing and talking for as long as I can!

Christine

   
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